Home!

The docs gave Katie a going home date!!!! one week from Friday. She is doing really fantastic!
She had a super day today, lots of visitors. She worked out hard at therapy. She got to meet Higgins the therapy dog and spend some time with him. She even played a game of kickball. It is amazing what they think of to help work those leg muscles. Katie got her leg brace today too. It is still uncomfortable and she is getting used to it.

Bake sale is on Nov 16 between the 9:30 and 11am services. It will be down across the elevator on the lower level at church. Any and all baked goods welcome!


And do not be grieved, for the joy of the LORD is your strength - Nehemiah 8:10

Pictures

Here are some pictures of katie thanks to Kay Ruhl!

Katie had a great time at the mall. She got some Hannah Montanna lip gloss and ice cream. She spent the morning in a hard work out and then went on the field trip to West County Mall with the staff from the hospital and other kids from the Rehab floor. Kelly said it was a great sucess! Activities in the evening are becoming a real challenge for Kelly. Anyone have any games that might be good for Katie? Katie's Girl Scout Troop had a halloween party and made a trick or treat bag of goodies for Katie this week. Her appetite and sense of humor are on the mend so the goodies should be a real treat.

Mary had a end of the season volley ball party at school and Kelly got to go to it with her since Katie started this new extended rehab hours. That was nice for everyone.

Questions for the future:
Did the chemo work?
Does that mean the risk of strokes are gone or are they just lowered?
Is Katie expected to get back most function?
Long term outlook?

Let's not let our support wain and remember to pray, pray, pray

Bake sale update

The date of Nov 9th seem like a stinker for alot of folks. How about we push it to the next weekend? I'll check the church calender and make arrangements for space. This will give us alot of advance notice to everyone too. Nov 16th Ok? Thanks for the support!

The Lord is my helper, and I will not fear

Rehab

Katie got moved up! She now is on the rehab floor. Her new room number is 5204. They take rehab very seriously there and Katie will be gone from about 8am to 4pm daily getting her PT and OT. Tommorrow she gets to go on a field trip to West county mall! They had her on a bicycle today and seem really pleased. They are very strict on visiting hours and everyone has to leave by 8pm so Katie can get ready for bed. A good night sleep is essential since they put her through some really hard work-outs during the day. Kelly is estimating another 2 wks before they get to go home. From her mouth to God's ear.

Remember: I can do all things through Christ who strengthens me

Good day had by all

Today was a good day. Kelly and Erin got to go to church. Kelly has said that church has given her such comfort and strength. Lots and lots of visitors has brightened Katie's day. They brought lots of love and laughter with them. She is going to be moved up to the rehab floor (5th) tommorrow. If you thought they worked her hard before, you ain't seen nothing yet! Katie has been up and walking in the halls. She is so determined to get back as much as she can. She was bummed to miss trunk or treat and I asked Kelly is it would make her sad or make her happy to see some of the kids in their costumes. Kelly thought Katie would like that so maybe this week you all could visit Katie in your costumes. Do a reverse trick or treat and bring her some candy?

I would like to organize a bake sale/donation and the date that make most sense is Nov 9th at church. Only problem is I am out of town that weekend. Anybody out there feel up to taking this on? If not we can always plan another date. I don't want it to be too far away as Kelly's bills are slamming home now.

That is all for today, sorry I didn't put a verse with the last post, won't happen again

They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run and not be weary; and they shall walk, and not faint

Dress Down Days at Salem

For just $15 per family, you can dress down (wear jeans or untuck with no belt on Fridays! the money will go to the Rideouts for help with expenses. I don't know about everyone but Anna and Emma love to untuck and not wear belts so this is a slam dunk for us. If every family at the school did this, think of how much we could raise. Lets go Wildcats!!!! (Isn't there a movie where they say that? hmmmmm)

LOL & Regions Bank

Another night of poor sleep! Wow getting out of the PICU has been great but boy Katie and Kelly could use a good night sleep. Katie had to pee about every 2 hours and still is unsteady on her feet, so everytime she had to go, so did Kelly. (Katie is so going to kill me for putting that in)

Katie complained of some soreness in her rib area and was going to have a CT Scan to check it out. Katie thought she probably just strained it laughing too hard! How great is that? (Not the strain, the LOL for Katie)

Physical therapy has been working her hard and they are going to be moving her to the Rehab floor sometime between now and Monday. Just waiting for a bed to open up. Katie has been up walking the halls, building her strength back up.

Through all of this, Kelly has been at Katie's side. She has just received her last paycheck and is using FMLA to keep her job. Her expenses (gas money) utilities and bills haven't stopped while this has been happening.

An account has been set up at Regions Bank (any branch will do) under the Rideout family name to help with expenses.

Anyone can contribute just by walking into a Regions Bank and stating they want to make a donation to the Rideout family. Anything you can contribute would be really appreciated. As always you prayers are needed and appreciated!

Kelly and Katie are fighting the fight of their lives to bring this wonderful little girl back. That is what they need to be able to give their all to right now. Let's lift some of the load for other things off Kelly's shoulders!!!!

In everything give thanks, for this is the will of God in Christ Jesus concerning you
1 Thessalonians 5:18

Work, work, work

Wow! what a day. Katie got moved out of the PICU! yeah!!!!! Her new room is 3504 on the 3rd floor. It should be much quieter at night and more spacious for all those cards and stuffed animals. Now she can have balloons and flowers too!

The docs had their big meeting with the family. They are pretty much on the same page. The neurosurgeon told Kelly that there was a 15% chance of another stroke if they tried to do the brain biopsy. The really shook Kelly. There won't be a brain biopsy being done unless something really drastic changes. Listening to the docs discuss Katie really shook Kelly and she had a little time where she cried. Her brother and father gave her great support today. Kelly has been so strong through all this and today has been a really hard day for her. Prayers and hugs are definitely called for!

Katie is undergoing intense physical and occupational therapy. She is learning to brush her teeth and hair and put on her clothes mainly using her right hand. The docs said "physical therapy is going to work her ass off!" They want her in the hospital for at least another 2 wks of intense physical therapy.

Overall, lots of good stuff happened today for Katie but a really ruff day for Kelly

He makes me lie down in green pastures, He leads me beside quiet waters, He restores my soul
Psalm 23:2-3

Thanks!

Poeple came armed with buckets, brooms, rags, lawn mowers and more! Thanks to all who participated in helping the Rideouts settle into their new place. Erin was awsome as our director. Boxes got organized and put away, the rugs got shampood, the lawn got mowed, the cupboards and dishes got washed. Even Sadie's cat box got cleaned. Even the sign on Erin's door (don't come in) was removed as her room got organized and unpacked (that girls got some shoes!) What an incredible crew, thank you, thank you, thank you!

The King will reply, 'I tell you the truth, whatever you did for one of the least of these brothers of mine, you did for me.'
Matthew 25:40

Saw Katie last evening. She was intently coloring a pretty picture and getting on her mom for not getting her picture colored. We talked about her bedroom at home and how she would really like it (and her dresser) painted a cheerful color. (She could use some cheering) She couldn't decide on a color and finally decided on "what ever". Emma says Katie likes pink. What do you think? Katie is really pleased with all the cards and posters people have made and sent. It makes her new room in the PICU look less scarey. The orthopedic folks are going to come up with something for Katie's left foot as she has "foot drop" and if it stays like that, her achilles tendon will shorten and make it hard for her to walk. So she will get a brace or "moon boot" to help stop that. She was taken off one of her blood pressure medications and everyone seems pretty pleased at how she is doing. She was pretty tired as the PICU was really loud the night before and she and Kelly didn't get much sleep. Hopefully tonight she can catch up.

pray without ceasing; Thessalonians 5:17

Unpack the Rideouts!

Let's get the Rideouts settled into their flat! We need to clean and unpack the Rideouts into their new flat. Kelly will have a key available on Monday the 20th so if anyone can come help, I'll be there about 4pm till around 8pm. Come for any or all of that time. Bring any cleaning supplies, mop, broom, dust clothes you have. 5315 S Broadway. If you are facing the building it is the flat on the left. Erin will be their to help direct where things go.

This is a real tangible way to help and won't take long if we all pitch in!

Ask, and it shall be given unto you, seek and ye shall find, knock and it will be opened to you.
Matthew 7:7

Great news!

A CAT scan was done and the haze on Katie's lung was totally gone! Talk about the power of prayer! So no surgery. The Docs decided the cyst in her sinus was benign(not bad) and probably had been there for a long time so that was put on the back burner for possible removal at some future date. They have taken Katie off her blood thinner shots. Yeah!!! She will be on a blood thinner pill instead. Her IV antibiotics are also changed to pills too. All of this is really great news. Katie has been really down the past couple of days. She could really use some prayer for her emotional state. The shy smile we love so much is really having a hard time shining right now. She did eat an Imos pizza and salad, surely that's a good sign right?

Be strong and courageous, do not be terrified, for the Lord your God is with you where ever you go. Joshua 1:9

Get it together docs!

Well chemotherapy started last night and so far Katie is doing ok with it. No nausea or anything.
The docs though are not on the same page as can sometimes happen at a big teaching hospital. Several things have shown up on Chest xray and a cyst has shown up in that nasty sinus infection. Some of her docs want to explore those things further. That would mean stopping the chemo and blood thinners. That is super risky and might not reveal anything! They are going to have a big pow wow and give Kelly the straight scoop. It is enough to make a person go crazy!
Please continue to pray and lift the Rideouts up for healing, peace and comfort

The Lord is my shepard I thall not want, He makes me lie down in green pastures. He leads me besides still waters, He restores my soul. Psalm 23: 1-3

Oct 16th

MRI done! whew, those tests are really loud and scary but Katie's repeat MRI got done around 3pm today. Unfortunately the news was not good. Katie's blood vessels were in worse shape than before. They are more narrow, meaning it is harder to get blood through them to the brain. Since the steroids did not have the effect the docs had been hoping for... chemo is going to be started tonight.

Katie is still in the PICU but if you go in and turn to the right you will be in for a surprise. Katie got moved to a new room in the PICU. One with a window! #2218. I think being in the hospital is finally getting to our ray of sunshine girl. She is tired and mad and sad and sick of being sick. I asked Kelly if there was anything (short of the Jonas Brothers visiting in person) that might cheer her up or at least distract her but nothing came to mind.

We are going to get a work group together to get their flat cleaned up and unpacked. If you can help, let me know. We'll probably do it next week one evening. We could use all the help we can get!

Do not worry about tomorrow for tomorrow will worry about itself. Each day has enough trouble of it's own. Matthew 6:36

Remember to pray!

Yesterday was a crazy day! There was so much going on and none of it was fun for Katie! The sinus infection that Children's found is now being treated by IV antibiotics because they feel it is alittle "weird" looking and it's placement in her sinuses is further back than what they thought. So with all the different medications Katie is on (Dopamine-to get her blood pressure where they want it, antibiotics for the sinus infection and various others) she needed a central IV line. What that means is a special IV that is threaded into a major (big) blood vessel. It is called a PICC line and was put in her right arm. With the various ECHO cardiograms done, they showed a small hole in her heart. The docs don't think that this caused her strokes but since she has had strokes they want to close the hole up. That is for the future though. They wanted to do another MRI so see if anything had changed with her blood vessels in her brain and make sure they didn't miss anything but Katie was having no part of it. They gave her medication to help her calm down but it didn't do a thing! She was so upset that they cancelled the MRI yesterday and rescheduled it for today. They are going to give her a short acting sedative so she won't remember a thing about it. I hope that helps. The machine is so loud and it is so closed in that it really scares her!

On the home front, Kelly wanted to say a special thanks to everyone who is helping and looking out after Erin and Mary.

If you didn't know, Kelly and the girls had moved like the week before all this happened and everything is still in boxes and the flat needs to be cleaned and set up. Obviously Kelly doesn't have time to do this. Maybe we could get a group together and get this done for them? Kelly has to get another key made to the flat and then we could do it. Let me know if you want to help.

The other thing to think about is the fact that while Kelly has been living at the hospital with Katie, expenses haven't stopped. Maybe we could do a bake sale to help with this? Thoughts?

Let me know if anyone has other ideas to help- Susan Gaffney 314-481-2302

Trust in the Lord with all your heart, He will be with you where ever you go.

A better day today! Katie had a better day today. All the docs are pretty much on board with her diagnosis of vasculitis but have differing opinions on what her treatment should be. They adjusted her steroids up and want to wait to see how that works. She is stable and they are really happpy about that. Mom nixed the idea of a brain biopsy when they told her they might not get the right part and even if they did it would not change the treatment they reccomended. Now I know we all think we are losing our minds, but nobody wants to on purpose! Katie got her hair washed, which had to feel good. She got a pink volleyball that her team dedicated to her too! All in all a stable day!

Matthew 19:26 Jesus looked at them and said, ".......... with God all things are possible."

This is the first note on Katie's blogsite. I created this site per Kelly's request so she could get information out to everyone regularly and reliably. I am Katie's Girl Scout leader Susan Gaffney and the mother of a little girl (Emma) who counts Katie as one of her bestest friends. I will post things on here daily as soon as I get information from Kelly. Kelly will post as she has time and energy to. Between us, we hope to keep you up to date.

We'll go back and give you history of this story on the next posting but for now we just wanted to get a site up and running. For everyone out there, you have to agree, knowing Katie is a real treat. She is a fabulous 10 year old with an infectious smile and sweet disposition. She is loved by all who know her. Every mother wants her for a daughter and every child wants her for a friend. She loves Jonas Brothers, Hannah Montanna, kittens/puppies and volley-ball among other things.

This past week, Katie had some headaches. Don't we all? Nothing that really stood out as worse than your normal headache. Then her left arm and leg started giving her trouble, her smile became lopsided. Through this Kelly was trying to get her evaluated and helped. What could cause a healthy 10 year old to do this? Well St Alexius didn't know, St Louis Children's Hospital didn't know. Katie's pediatrician knew this wasn't right, Kelly knew this wasn't right (certainly not due to a sinus infection which Children's had diagnosed) Kelly kept pushing till someone acknowledged this was serious.

Cardinal Glennon Children's Hospital has finally given Kelly a diagnosis today. Most of you know that Katie has had several small strokes, probably over a period of time. No one knows when they started, there is no way to tell. What has caused Katie to have several small strokes that have affected her left side is what is called Vasculitis. It is a very rare condition and there are many types and forms but none of them are good. The underlying cause of the vasculitis is due to hyperactive immunological damage. (which basically means your body is attacking itself) Immunosuppressants may be used to stop it. The Rheumatoidologist has reccomended Chemotherapy for treatment. Vasculitis can affect any body organ at any time and can cause alot of damage. Untreated, the prognosis is very grim. The diagnosis is not a absolute but so far all the docs are agreeing that this is what has attacked our Katie.

Katie has been a major league trooper through all the testing so far. She has gone through more testing than most people do in their entire life. She has had a CT, MRI, spinal tap, blood work, more blood work, angiogram, echo and more blood work. There is surely more but that is what I know about. Through it all Katie has bravely smiled and can explain it to any and all. She is amazing!

This has been really hard on her sisters, Erin and Mary. They have been a major support to Mom while trying to maintain all their school work and help keep Katie from going stir crazy in the PICU (Pediatric Intensive Care Unit)

What you can do? Pray, Pray, Pray and then pray some more! Keep in your heart:

I can do all things through Christ who strengthens me." Philippians 4:13
God is our refuge and strength, a very present help in trouble. Psalm 46:1

That is all I know currently
I'll update this later today after I talk to Kelly.